A kona wahi e pili ana i ka mea hemophilia

Hemophilia - he maʻi weliweli, a kaulana. O ka poe i hoihoi i ka mōʻaukala, e ike i ka mea o ka maʻi, waiho wale aku i ke keiki a me ka hope Russian Tsar Rotehama II - Alex. Akā, i ka hemophilia, a pehea ia ua ho'īli?

Hemophilia kapaia hereditary maʻi pili me kaʻole koko clotting, ma muli o ia i kekahi kanaka ke make me ka hopena o ke ahiahi, he uuku poino a me ka poino, e i ola kanaka apuepue hoʻolohe. Iho mailoko o ka kekahi me ka hemophilia hiki ole e, no ka mea, ua kena ae la ma ke alo aku o ka aaiaoe hewa i loko o ka hoʻomanawanui. Aia i 3 ke ano o ka maʻi, kāna hana pu ole, i loko o kekahi clotting kumumea. Na wahine i aneane loa e ae mai ka hemophilia, akā, ka mea, e nā moku halihali mokulele o ka aaiaoe maʻi , a hiki i hanau i na keiki, ka poe e e diagnosed me hemophilia. I na kanaka, ka mea, ua ana i ho'ākāka 'ia ma ka kakahiaka nui elemakule me ke kōkua o nā ho'āʻo ma no ke koko clotting.

Hemophilia ho'ōla ua ole i maopopo aoia, nae, e hoomanawanui i loaa injections koi 'ia a me ka ole e makau hiki no na kahe ana ke koko. Aka hoi, ka mea no e e mau makaala lakou, a malama ia oukou iho i nā palapū. Kēia maʻi hoike mai ai ia ia iho, ma ka wanaao, a elemakule a me ka hiki ke diagnosed a hiki i loko o ka haukapila, a hiki i hāpai keiki. Main symptoms o hemophilia i: a mahuahua nui kahe ana ke koko, hematoma ma hope o nā palapū, kahe ana ke koko ma hope o ke ahiahi nīnūnē surgeries.

E like me ia MEA, o ko nā mea a pau i ka honua, he 400 tausani kanaka e loaa ana mai ka hemophilia. I ka 1989, ua hoʻokumuʻia ka lā, e hakakā i kēia pilikia maʻi, i ua papahana kanaka ka noonoo ana e huki i ka pilikia i ka mea, e manaʻo, ka mea hemophilia, ka mea i ka pono o ke ola ana o ka poe no a ka mea lilo i ka make hoʻoweliweli hiki niho pōʻalo.

Hou ano o ka maʻi, hemophilia kekahi loli aʻe ma ka oolea, ke kaumaha ma muli o ka degere o ka deficiency o ka ololi o ke koko coagulation. He aha ka hemophilia i loko o ka oluolu ano? No laila, kapa degere o ka maʻi, i ka wa a ke kahe ana ke koko hoʻomaka wale nō ma hope o ia mea ʻoki kino a me ka trauma. Mehana palapala hiki ke diagnosed i loko o ke kamaliʻi a me kula makahiki, ka mea, ua hoikeia mai ma ke ano o ka nui paopao koke mai oia ma hope o nīnūnē nā palapū. Loa palapala - ka mea, ua kahe ana ke koko i loko o na kamalii uuku i dentition a me ka nui i pēpē i ka wa i ke keiki e ao hou e neʻe kū kaʻawale: e kolo a hele.

Kaawale mai ka mea i ka poe i ike i hemophilia ua e lohe, e noi mai ana 'inikua noonoo no nā palapū, ka mea, a me ko lakou mau hoahanau, i pono manaʻoʻike kākoʻo, e like me ka maluhia aʻo, ka mea, ke nui paakiki - e noho me me ia i ka maʻi. Ke keiki i pilikia ke kumu ia i hiki ole e holo a paani e like me kona na¯, ma ka hou, nā kumu i loko o kindergartens e hoomaopopo aku, nā kumu i loko o nā kula a me nā kumu pono, e mau ao e pili ana i ke keiki i ka ola hiʻona. Eia naʻe, inā 'āwīwī a me ka pono hana ana o kanaka me ka hemophilia noho like loa me nā kanaka.