Ke kahupuaa maʻi pale: maʻi hōʻikeʻano

Mawaena o ka aaiaoe maʻi i kahi kaʻawale o ke kahupuaa maʻi pale, i kapaʻia ma hope o ka Hōlani nä känaka 'epekema. He hōʻike i ka maʻi i loko o ka kakahiaka 20th kenekulia.

symptoms

Ke kahupuaa maʻi pale - he hereditary maʻi, a ua wehewehe aku ma ka piha kaawale o ka lohe poho a me ka hapa lilo o ka hihiʻo. Nō kāu, he kanaka me keia maʻi pale e kuli hanauia. Ka nele o ka hālāwai hoʻolohe manaʻo mea ku pono i ka retinitis pigmentosa. A hihiʻo ua i nā nalowale ma muli i ka abnormally kokololio poe oo hoi o ka retina, i hoʻonāukiukiʻana mai o ke kahupuaa maʻi pale. Symptoms o ka maʻi hoike mai ai ia lakou iho ana i loko o adolescence, akā, he mau manawa, i ka wa a lakou e malama i na keiki opiopio, mai ka makahiki o ka elima.

haule nānaina

Ma kekahi kakahiaka nui ke kahua o ka maʻi pale hoike mai ai ia ia iho e like me ka "po makapo", i ka wa a ke kanaka haalele i ka hiki i ka ikeʻaneʻane nō i loko o nā wahi ma kahi e kau iho i lawa. Haʻalele ola kanaka, ka mea, aole ia i ke hakuloli i ka pouli, a me ka loa hiki ole ho okele ia. Eia, ua lilo akuʻike ākea (ʻaoʻao) hihio, ua lilo tunnel. Central hihiʻo hiki e ka hailonaʻana no ka pono, a hiki lawa makahiki, akā, ma kona wa elemakule i ke hoʻomanawanui Ua kokoke makapo, aʻo ka mea paʻakikī loa nanaina aku a me ko mākou hopohopo.

Eia hou kekahi, kanaka e loaa ana mai ka luhi a me ka pinepine Kahalaopuna luhi. I ka mämä holo o ka haule ana hilinaʻi nui ma luna o na ano kanaka o ka maʻi - a pau e hele i ko lākouʻaoʻao iho, akā, mau oi a emi i nā. People me ke kahupuaa maʻi pale i loko o ka hapa nui o na hihia o Nyos i ka ōhumu o ka neʻe 'ana. Mua eia kahi mea akaka i loko o ka pouli, a me ka wā e hiki mai - a ma ke alo o ka malamalama.

Ke kahupuaa maʻi pale: i ka lapaau ana i ka maʻi

Eia naʻe, lapaʻau mea palupalu iho ma ke alo o keia maʻi,ʻaʻole nō he pono ka loa o ka nohoʻana. Akā, iʻike, mea mākaukau nui ma ka hua'ōlelo o ka manaʻoʻike kākoʻo i ka hoʻomanawanui. I ka lohe ana hihia hoʻi 'ole loa devoid o lohe kanaka, a no laila, i pilikia i ka pü. A hoomaka ae la oia e lilo hou a me ka hihiʻo, pinepine panics, e pani ole ai ia e kamaʻilio me ke waho honua. Ke kahua Ua huikau ma ka mea i ka mea mua symptoms ikeia ma ka adolescence, ka wā o ka naʻau mea i hale lio.

Inā manawa 'aʻole i kōkua i ke kanaka me ke kahupuaa maʻi pale, i ka pahiki Ua kiʻekiʻe ia ma luna o nā makahiki ia ia keia i ka noʻonoʻo, nā kīnānā - e like me schizophrenia. I ka loaʻaʻana o nā symptoms mua Pono eʻike i ke kauka, a i ka helu o aaiaoe ho'āʻo ma. Inā i kaʻike, ua hookupaa iho la ia, mālie adapting ke hoʻomanawanui i ka hou aku o ka lanakila ma i hiki ia ia ke ola i ka piha ola: e kiʻi i ka hoʻonaʻauao 'ana, ka hana, e hoala i ka ohana, etc. Akā, ma keia hihia me ka kōkua o ka' Oihana .. (Psychologists, mea aʻo , a pela aku ...) hiki ole ke hana.

Ke kahupuaa maʻi pale: na kumu o ka maʻi

No ke aha la he mea i kēia maʻi? I kaulana ma luna, ke kahupuaa maʻi pale - he hereditary maʻi, ka mea hiki ole ke iho mailoko o, he mea hiki ole i ka loaʻa. Ua ua loaʻa i loko o nā kānaka a me nā wāhine like. Ka mea, e ae aku ma kahi o elima a eono pakeneka o ka heluna kanaka o ko mākou Honua.

Ke kahupuaa maʻi pale ua ili ma ka recessiveʻano. Inā nā makua i ka mai a me ka mea, e nā moku halihali mokulele o ka'ōewe, na hiki ole i ke keiki e hanau e me ka maʻi pale - ma kahi o 25%. Inā ka Media (a me ka hoomanawanui) He hoʻokahi wale nō, ka kamepiula mea negligible. Ka pahiki - ma kahi o 0.5%. Akā, i ke keiki, e maopopo leʻa e i ka lawe ana i ka maʻi.

Hōʻoia oe iho i loko o ke alo o ke kahupuaa maʻi pale'ōewe hiki ole - laekahi 'epekema no iʻaʻole i loaʻa aoao. Me ka manao lea hoi au ia mea hiki i ka ike e pili ana i ka mea wale nō ina ka lāhui kanaka he na kanaka, ka poe i ka maʻi. 'ōewe lawe i ole i ke hopohopo e pili ana nou iho - symptoms i loaa ia ia kino. Akā, ka mamo - i, ina ka kekahi makua e kekahi e ka "mea nana" o ka'ōewe.

Pehea e kamaʻilio me ka poʻe me ke kahupuaa maʻi pale

Pü me ka kuli visually hihia hoʻi kanaka mea pilikia. Mua, kokoke i loa o ka 'ōlelo, a me ka lua, ke kahupuaa maʻi pale nā mea maʻi pinepineʻano pākīkē, nanaina aku a me ka resentful o ko ke ao nei a pau. Nolaila, e pono e i kamahaʻo ke ahonui e ana leka uila.

Hoahanau, hoa a me kekahi poe e ae, ka poe pinepine ana mai iaʻu i kanaka me keia aaiaoe maʻi, poe akamai i kaumaha i ka penei kōkua:

• Inā mākou e kamaʻilio e pili ana i ke keiki i iʻalo me na symptoms mua, oia e mālie akā, paa ka haʻaheo i loko o ke ola ma laila e e kekahi hoʻokau ', a, nae, hiki ke lanakila.
• People me ke kahupuaa maʻi pale pinepine haʻalele mai ka ike maopopo, i makemake e pepehi i me ke kūlana quo, a ike i kaʻike,. Ka mea āu e makemake ana e paʻa hoʻokohukohu nei i mea ole ka hana i. A me kanaka ola, ka mea i pono i keia hihia, e pāʻani ana, lawe malama o ka loa oluolu launa '.
• E kamailio pu ana me ka mea e loaa ana mai o ka maʻi pale, e pono e ku ma ka liʻiliʻi loa, mai ka mea (50-100 knm), no laila, i ka mea hiki ke heluhelu 'ike mai o nā lehelehe, a eʻoiaʻiʻo i ka maka i ka malamalama kumu. Ma mau, mea, mea pono e koho i ka'ōlelo maikaʻi-ho'ā wahi.
• Ma ka ho'āʻo pono e,ʻo ka noonoo ana o ia i kekahi kanaka, oe e hookokoke ia loa mai iā ia.
• Ke kahua o ka nānaina o kanaka me ke kahupuaa maʻi pale mea i kaupalena '. Gesticulate Pono e hoike no keia ololi - lima E e pili ana i umauma pae.
• I ka po, kanaka me ka maʻi pale hiki ole ke hana me ke kōkua. Ka mea, pono e ukali ma ke aoʻana mai o ka mea iki keʻakeʻa nei.
• Mai e hilahila ke kaumaha kōkua, no ka mea, e hoomanawanui i ke kahupuaa maʻi pale mau loa kūlana a me ka pinepine zakompleksovanny. E noi i kekahi kanaka e pili ana i ke komo '- no ka ia mea he nui pilikia.

ka hopena

Inā he mea i aloha ai kekahi poino mai keia symptom, ho'āʻo e lawe i kēia i loko o ka mea mau ana me ia i ka wā. Mau kanaka pono, e mālama mālie a me ka unobtrusively. Inā 'oe e pono i kekahi mea e kōkua i kanaka, ho'āʻo e hana ia ana mai, alaila, reassure i ka hoʻomanawanui ana ia mea maikai, a oia Makuakane ia me na mea a pau. Loa ia e lealea o kona flaws, a hoi hou no laila, mai'āhewa aku ia ia no ia, a hiki ina oe e huhu - paa hoʻi. pono hele mai Man i hua'ōlelo a me ka pilikia a me ka hoʻoikaika i ka manaʻo i ke kahupuaa maʻi pale - ka mea, aole pela scary.